Fight Continues

Apr 7, 20212 min read

My apologies as it's been a while since my last post. I've been going around in circles on what to even post about. I know I was going to do a segment on Palliative Care. Even that, I was still undecided on. I'm really just not ready to give in and say "yep that's where I'm at and need". Though you can be in palliative care at any time, there's reasons why I just won't enter that realm of life just yet.

So where am I at right now? What am I thinking? Honestly I'm in 100% fight mode. If anyone knows me you know my determination! If I want something bad enough I will truly try and find a way.

No one knows the cause to my lungs failing. Genetic testing isn't back yet. I'm not ready to just stop fighting and to think this is it, as if there's nothing left to do. If I am going to die, why not go out with a bang and doing so while actively trying to save myself from my own death?

I've been doing a lot of thinking about what it is I want, and what do I want to try. I've been doing a TON of my own research and reading medical studies that back the info up.

What I am trying and doing is what I think is best for my own health. I cannot advise anyone to do the same. I will make a more in depth post soon I promise. I know this is super vague! I do want to remind others that whatever I do, may not work for everyone. Please if you are wanting to try anything talk to your medical team first. What might work for one certainly does not work for everyone!

I don't want to go into too much detail yet on what I'm trying and doing. My next pulmonary appointment is at the end of April. I'm going to talk to my doctor and hope to get him on board so he can closely follow me.

Just know that I'm not done fighting!! I wouldn't have made it this far without all your amazing support and love so thank you so so much! Seriously I appreciate you all! You all are the BEST cheerleaders ever 💕